I did catch the last of the butterfly weed (this photo was taken in 2022) |
My last post was three months ago today. Rereading it today, I see I was blithely taking stock of my garden and nattering on about how many medical appointments I had in August.
What I could not foresee (who could?) was that three days later, two "routine" and "low-risk" endoscopic exams would set off nine weeks of hospitalization and skilled nursing facility stays (the first stay cut short to send me back to the hospital) for acute pancreatitis. Finally, on October 27, I came home and have been home ever since. Still a long road ahead as I rebuild core strength and muscle mass, but at least I am home.
Home, home, home.
Given that the earlier predictions had been that I would likely not return home until the end of November because of the severity of the extensive internal infection and damage, I was beside myself with joy as Warren picked me up to bring me home (the skilled nursing facility is about six blocks from our house). "Oh, look, the leaves are falling! I didn't miss fall after all!" I repeated some variation of that in every block until we pulled into our driveway.
I still say it whenever we run errands. I still say it whenever I look out the window and see the last leaves of the season drop to the ground.
This unexpected medical event was not only a shock to both me and Warren, but also a huge eye-opener as to the fragility of life and the unpredictability of time. We had always imagined I would die after a long, slow, fade-out from the myeloma and that there would be "time" to enjoy life together before that happened. Ha. I coded during my first hospital stay from sudden and acute hemorrhaging; Warren was present when this happened, so he got the full shocking impact of watching the medical team rushing to save my life.
A life-changing event? Absolutely. How could it not be? For him, for me, for us as a couple. Our lives moving forward will be forever shaped by this. It has been a crash course in what commitment means. For me, there is even a stronger sense of what Wilma Mankiller meant when she wrote about surviving a near-fatal accident: "there was the woman who lived before and the woman who lives afterwards." I am not the woman who lived before August 23, but I am very much the woman who lives afterwards. I don't know what that means yet, but here I am.
Contrary to my usual approach of being open about my medical status, we have both kept quiet about this one. Warren did not have the bandwidth to field questions about me, especially while he was launching the Symphony season and driving 25 miles one-way to see me in the hospital. He has spent hours and hours and hours with me, both while I was away and after I got home: caring for me, watching out for me, helping me recover. (As has my dear friend and former PCP, Pat.) But time to talk about me or answer questions? Heck, no. As for me, I had zero capacity for visitors while being treated and even after returning home. I had no capacity to even talk on the phone, let alone anything more. Even writing an email was a stretch for a long time. I am slowly regaining strength but I am still guarding my time and carefully watching my energy levels as I move forward into my new life.
Besides the simple and stunning gift of life, there has been another upside to this catastrophe: a reset of my attitude. Talk about the scales falling from my eyes. I look around and think what an amazing thing life is. What an amazing thing the world is. I sit at the kitchen table as the sun comes up and watch its rays spangle the frosted grass into a thousand diamonds and tiny rainbows. I step outside to see the impossibly blue sky (we are having a prolonged fall of brilliant sunny days) and take in a deep breath while I stand there, lost in gratitude at seeing that vivid sky over me.
The late, great poet Mary Oliver said it so well (in so many ways and in so many poems); she was a huge advocate for the importance of nature to our well-being, seeing it as a life-giving, healing force in our sometimes narrow lives. Oliver's challenge from "The Summer Day" seems most apropos as I move forward: "Tell me, what is it you plan to do/with your one wild and precious life?"
As I take stock from where I sit, writing this, I wonder. There will likely be a garden next year (as you can imagine, this year's garden ended up in tatters with my hospitalization). I am starting to bake again. I have been writing. But the question remains: what do I plan to do with my one wild and precious life?
Time will tell.
4 comments:
Oh my, you really have been put through the ringer, and Warren too, it sounds like. Each year that goes by, it becomes clearer to me what a gift this life is. I can imagine how much clearer that becomes, when barely skirting death. I'm happy to hear you are regaining strength, baking, writing, and making plans. A mutual Mary Oliver fan here. Take good care of yourself.
Thank you, dear Laurie. I saw your message just now and it was like a warm hug. Life goes on, and I am glad to be on this side of it!
Dear April, I was concerned that you hadn't posted in quite a while. Needless to say I was shocked to hear about your frightening experience. I happy you are on the road to recovery. It's nice to "hear" your voice again. Take good care, Aurelie
"Radio silence" is what one person called it. Thank you for your kind thoughts, Aurelia: recovery is indeed sweet.
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