Friday, July 14, 2023

Upon Further Reflection


Earlier this week, I wrote about the ever-changing landscape of my physical self and about my coming to terms with my increasing limitations. After I posted it, I thought, "Oh my gosh, I left out Jesse Stuart."

Jesse Stuart was a writer, now not often recalled or even mentioned in most places, although at one time he was one of the most anthologized writers in America. He is now largely remembered as a regional writer, as a writer of Appalachia, as a minor writer. His works included poetry, novels, children's books, and memoirs. 

My own connection to Stuart is far more direct than just reading his books. Stuart was born in the hills outside of Greenup, Kentucky, in the same area where my father's paternal and maternal families were also rooted. W-Hollow Road was a turnoff right by where my Grandma Gullet, my great-grandmother, lived in her later years. Stuart grew up in that area, taught in that area, and eventually established a home and farm on W-Hollow. (The farm is now a State Nature Preserve, created by Stuart before his death.) My grandfather, Grandpa Nelson, very close in age to Stuart, gave him a ride (on horseback) at least once when Stuart was walking back and forth between the hills where he taught and the town of Greenup, where he bought supplies for his classrooms. When I read Stuart, I hear familiar language and recognize the landscapes he describes. 

So what does that have to do with my thoughts about my own changing capacity?

When Stuart was 49 years old, he had a massive heart attack that all but killed him. He had a long, slow convalescence, all of which took place at W-Hollow once he was stable enough to be moved. (He was on a speaking tour when it happened; it was over a month before he could be moved safely back home, some 400 miles away.) Stuart was weak, he was depressed, and he was an invalid. No visitors, no excitement, very limited walking and movement until he built up his resistance and his heart healed. Although Stuart was a writer, his typewriter (this is 1954) had been put away because the doctors were concerned that he would damage his heart further using it. 

 Stuart's hands were stiff and he had no intention of squeezing a rubber ball to bring them back to life. So his doctors agreed he could write, with pen and paper, for a limited amount of time each day (two pages worth, initially).

The result of Stuart being given back a means to write was a yearlong journal, started on January 1, 1955, and ending on December 31. Stuart did not write every day, but he wrote often. He captured his moods, his physical well-being, and his slow and often painful journey to better health. He was acutely aware that he was now a "cardiac," and that this was a permanent disability that he had to live with for the rest of his life; his entries are threaded through with reflections on what that means. He wrote about his parents, he captured the sweep and scope of the seasons in his beloved W-Hollow. In his very last entry, Stuart wrote "[T]his is the year of my rebirth, from my death to my morning."

I had read excerpts from the journal, aptly titled The Year of My Rebirth, over the years. Coming into this summer, aware of my changing capacity, I remembered Stuart's book. No copies exist within the library systems I can tap into (most of the state) so I bought a copy. (I know, April doesn't buy things. But sometimes there are exceptions.) I have read it in pieces, setting it aside as library books with due dates come available. Presently, I am in October.

Reading Stuart has been a gift. His words from almost 70 years ago have given me reassurance and, perhaps, some needed support. My capacity has changed (and will continue to change) but I am still here. 

Wednesday, July 12, 2023

This Year's Gardens: Part 5

While watering the kitchen garden this morning, I stopped and yelled for Warren.

"A bean! A BEAN!" 

Cherokee Trail of Tears heritage pole beans

Warren came out of his shop and following my finger, then smiled. 

Indeed, a bean!

The garden is growing by leaps and bounds in some areas, by fits and starts in other. We are eating salads from the garden; the weather overall has stayed cloudy and cooler, so the lettuce has not burnt out. That's Black Seeded Simpson there that is filling our bowls:

Tomatoes are thickening on the vines, but nothing is ready. Last year, I picked the first ripe tomato on July 8. I am not even sure I will have a ripe one by July 18 this year. There will be a bountiful harvest at some point, but not yet.


The flowers and flowering plants are putting forth shows of color and variety, The cone flowers are in full swing:


The hostas are blooming too: 


And this is a Cup Plant, courtesy of our backyard neighbors. Dave brought me a planting last summer, warning me that it grows tall and likes to colonize, but right now it is behaving itself in its first year.


Bees love it; I will be trying to capture a few with my camera (no luck yet): 


The agastache, which we moved from the front bed to the back, is starting to bloom. It, too, is another bee-magnet throughout the summer:


And even the globe thistle is ready to join the show:


In the Hej garden, the zucchini are in blossom, but I am concerned about whether they are getting pollinated. Time will tell. And between the two gardens, the cruciferous plants in the kitchen garden (red cabbage, broccoli) are doing far better than the ones in the back (cauliflower and another type of cabbage). Something—insect, not animal—is having a field day on those in the Hej garden. I have no seen any insect movement on or around the plants, but something is clearly feasting. It happens.

Flowers, bees, almost ripe tomatoes, beans, and more. Life is good. 

Tuesday, July 11, 2023

Reflections

 

Photo by Wesley Tingey on Unsplash


Reflections.

I'm not even sure I like that title. But I have been kicking it around in my head (and on the coffee table in the downstairs study) long enough that I will go with it while I write.

In one of those perfect synchronous moments, a letter from my friend Tani (who I have known for almost 4 decades now), Disability Pride Month (July), and my own internal struggles all hit on July 1. My feeling had been simmering for a few weeks, but the sweet combination of Tani's words and the editorial comment on the the Poem-A-Day for July 1, "A Sick-Room Idyll" by Williams Gay, tipped me from simmer to bubbling. 

The editorial comment on the poem was that it offered "a rare glimpse into disability space." Tani matched it as she hashed through her thoughts on the possibility of being "chronically severely disabled." Those thoughts wove deftly into my own reflections (that word again!) on what I coming to see as my "new" limitations. 

In late June, while posting a garden update, I wrote about my capacity, which is an ever-changing measure. When I was writing it, I was thinking about a mid-month trip to Pittsburgh that had rattled my conviction that I was just a "little tired." Shortly after that post, Warren and I had a long conversation about a long-planned vacation east and agreed to cancel it. There was a little bit of sadness in that decision, but also some relief. (And to be fair, the concern about my physical limitations was only one of four factors that caused us to pull the plug.) 

Tani wrote about her mental and physical bandwidth being impacted by her situation. I like that term: bandwidth. I replied with a thumbnail synopsis of where I am at: energy levels, decent. But endurance levels? Nope. I can go and do, but then I am done. A vacation with a lot of driving and sightseeing? Ha! The adrenaline would carry me along for a bit, but then I would collapse—exhausted, unwell, and totally drained, with a bandwidth of zero. And based on what I have been experiencing, the recovery time would be extensive. I doubt my body can take it. 

Yeah.

So, like Tani, my thoughts dwell increasingly on being "chronically disabled" and what that means. (Come on, aren't two progressive incurable blood cancers enough?) Going back to the poem with its "rare glimpse into disability space," I increasingly think about what that may mean for me. (Not to mention my friend, Tani, who is still working with doctors and physical therapists to see whether she can make progress in her situation.) What is my disability space? What does it look like? Feel like? How will it impact me as I continue to live my life the way I want and hope to? 

Synonyms for "reflection" include "contemplation," "meditation," "rumination," and "musing." So if you see me and I seem distant, don't take it personally. I am merely ruminating and musing.

And, of course, reflecting. 

Saturday, July 1, 2023

At the Half: 2023 Grocery Purchases


We just finished the month of June, end of the Second Quarter of 2023 and the halfway point through the year. I spent some time with a calculator and the file in which I keep notes on our grocery expenditures, and I am ready to report the results.

Second Quarter highlighted a trend I had not really paid attention to before. We had a month of stocking up (April), then a lean month (May), then another stocking up month (June). The results are so dramatically different that after totaling up our June expenses, I wrote this note on my findings:



(Interesting that I posed it as a question instead of a statement.) And yes, July can and will be lean because that was the point of the stocking-up grocery trip in June.

Second quarter numbers: $716.39 total, of which $28.65 was spent on non-food items such as bleach or toilet paper. That averages out to $238.80 a month, up quite a bit from the First Quarter average of $177.35. Year to date: $1248.96, or an average of $208.16 a month. My goal when I noted the First Quarter expenditures was to come in at an average of $200.00/month, and I still think that figure is attainable. 

I made some further observations beyond the pattern of a heavy month followed by a lean month. There were some freebies in the Second Quarter, typically because of store perks or rewards. (On that note, ALL of the laundry detergent we have (several bottles at present) are either free or almost free (less than a dollar) because I get "Bonus Bucks" from CVS, where I fill prescriptions.) And there are a couple of indulgences (mild by many standards): we bought large packs of chicken thighs rather than drumsticks, at a cost of 20¢ more a pound, because we prefer thighs over drumsticks. And there is a pasta that Aldi carries, its Priano label, that we buy for linguine rather than the cheaper Reggano label, because we like the Priano better. (We use Reggano when buying penne pasta, finding it just as good and cheaper than we can find at Kroger, unless there is a sale going on.) I can live with those "splurges."

We try to be frugal with our expenditures for lots of reasons, starting with the reality that neither of us are shoppers just for the sake of shopping. (That is especially true of me; I have never enjoyed shopping, be it for clothing, food, or what have you. I love books, my one shopping weakness in decades past, but even that itch has died down to embers.) So it it is pretty easy for us when we do enter a grocery store to stick to the list. Some ask me whether we feel our limited food purchases makes it boring to eat or hard to come up with meals. I do 99.999% of the cooking, so I will answer that succinctly: No. I enjoy coming up with tasty concoctions made from what we have on hand, and if I can have leftovers for the next day, then bonus points for me! We always have staples, and that too makes planning and cooking easier. And to paraphrase Hope Ware of Under the Median, recipes are a suggestion list, not a mandatory you-must-do-exactly-this-for-this-dish mandate, so that makes cooking easier, less stressful, and far less taxing. 

2023 is halfway done! On to Third Quarter! 

Thursday, June 29, 2023

This Year's Gardens: Part 4

 

Blossoms on the Cherokee Trail of Tears Pole Beans 

Sometimes, a picture does say a thousand words. 

Tuesday, June 20, 2023

This Year's Gardens: Part 3


My last garden update was about four weeks ago. My, how the time flies. And yes, there is activity in the gardens!

I am starting to see the first tomatoes. The peppers are thriving; so are the red cabbages. (As well as the broccoli and cauliflower.) The zucchini are starting to spread their leaves.

The first sowing of basil was pretty much a disaster, as in "nothing happened." I wasn't even sure I wanted to try it again. But I did: I resowed the bed, announcing to Warren that if this didn't work, I would just buy basil at the Farmers Market to make pesto this year. (Well, that and the two basil plants I bought as a pitiful backup.) 

It worked, apparently. It seems I will have a basil crop after all! 


The basil is coming up!

The all-star in the vegetable gardens this year is the Trail of Tears pole beans. They are already reaching new heights and tomorrow I will be crafting more routes for them to spread up and over.

The pole beans reaching for the sky

My biggest surprise? Last year, I sprouted and planted four small patches of globe thistle from seeds I had harvested the previous fall from a healthy patch just down the street. I got nothing; the starts all withered away. So imagine my surprise a few weeks ago when I was doing some light weeding in one of the front beds and came across something that looked kinda sorta familiar. It was one of the patches of globe thistle, making an appearance this year!


Globe thistle! 

I am having some serious conversations (with myself, with Warren, with a few others) about how much capacity I have in terms of time and energy, both physical and mental. My capacity impacts what I do, have to do, want to do, am willing to do. Yes, all IS stable in Cancerland, but I have no illusions about how far out I am on the survival spectrum (way out there) and how much my body has endured over the last 19 years. So seeing this plant, which I had given up for lost, come up unexpectedly, gave me a little boost. I still have a lot of thinking to do and I may be writing about some of that in the weeks to come, but for now I am looking forward to seeing the globe thistle bloom. 

Saturday, June 10, 2023

Early June Update

When I posted a garden update in late May, I mentioned the outside stresses on our schedules here. A lot has happened since that May 24th post. 

The Symphony office DID get moved; the very last items left on May 31. There was a great team of volunteers, with Warren spearheading and planning the whole event. Warren, Office Assistant Sharon, and Music Librarian Laura are still settling into the new space (Warren's comment when he came home yesterday: "I just needed a binder clip to hold some papers together. Couldn't find one anywhere.") but with 4th of July up next (a free outdoor concert that some 7000 folks attend), we are all relieved to have the move done. 

On the heels of the move, we headed off to Mayo. It is about 660 miles from door to door, and this was another rocket trip, leaving Monday and arriving back home at 1:05 a.m. Thursday. This is likely our very last rocket trip; I will time the next appointment to be later in the afternoon, spend the night in Rochester, and then drive back during the day. All is well on the cancer front: the myeloma is stable (still!) and the secondary cancer (from earlier treatments) seems to be just sitting there (which is what we want). 

But our travels are not yet over, not by a long shot. This Wednesday, we head to Pittsburgh for the national conference of the League of American Orchestras. Pittsburgh is only four hours away, not 11 or 12, so I am not dreading the driving. There is more travel in July, but I will save that for later. 

I will update the garden in a separate post. The early summer continues to be very, very dry, causing some issues with some of the plantings. 

The physical toll of traveling aside, June has been good. A former colleague from Juvenile Court stopped by on a midafternoon break yesterday and we caught up. (Dana was out walking and called me out of the blue to drop by. It was great.) He is about to retire, and he said quality of life was one of the big factors in his decision. I understood immediately—like me, Dana has enjoyed his job at Juvenile Court immensely, but there are other things he and his wife want to do and he is just looking for the time and peace of mind in which to do them. Some of those things are travel, but some of them are as simple as sitting out on their patio and enjoying a glass of wine. Yep, yep, yep.

And as we sort our way through the weeks and obligations right now, I am reminded daily (heck, sometimes hourly!) of how grateful I am that I am sharing this journey with Warren. Not just the love and the support and the encouragement (and I could go on), but also this perfect response that rolled out of his mouth as we were getting ready to head to Mayo. I needed to make a very quick run to the grocery for something for the trip, and I asked him if we needed anything else. Warren was working in his shop, and after putting down the tool he was using, he looked at me and said, "No. And if it turned out we did, I'm sure we could figure something out with what we have here."

It doesn't get better than that.